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SPF Vision: The day where all individuals with HSP or PLS are diagnosed, treated and cured.

State of HSP Research: The Promise and the Reality

by Allen Bernard

Researchers working on hereditary spastic paraplegia, better known as HSP, know more today than ever before. They are uncovering new targets for drug discovery all the time. They are discovering the common pathways that cause and connect the many forms of HSP we all deal with everyday. They are finding connections between HSP, PLS and other, better known, motor neuron diseases like ALS, Parkinsons, MS, CMT type II and others all the time. This is good news for everyone.
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News And Events

Hereditary Spastic Paraplegia Overview

The hereditary spastic paraplegias (HSPs) are clinically and genetically heterogeneous disorders characterized by lower extremity spasticity and weakness (occurring in variable proportion). When symptoms begin after childhood, they usually progress slowly and steadily. When symptoms begin in very early childhood, they may be non-progressive and resemble spastic diplegic cerebral palsy.

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Making An Injured Central Nervous System Grow Again

Unlike peripheral nervous system (PNS) axons, central nervous system (CNS) axons have very little regeneration potential and do not spontaneously grow once injured. One of the most common CNS injury is the spinal cord injury (SCI).

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Be lucky – it’s an easy skill to learn

Those who think they’re unlucky should change their outlook and discover how to generate good fortune, says Richard Wiseman A decade ago, I set out to investigate luck. I wanted to examine the impact on people’s lives of chance opportunities, lucky breaks and being in the right place at the right time. After many experiments, […]

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Can Exo-skeletons Help?

Mechanical suits known as exoskeletons can help people with spinal cord injuries stand up and walk away from their wheelchairs — but not without training. Subject terms: Spinal cord Metamaterials Spinal cord injury It’s the TedMed conference in 2011, and 37-year-old Paul Thacker grunts a little as he rises to his feet using forearm crutches […]

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How HSP related to PLS and ALS – This 2001 paper from SPF medical director Dr. John Fink explains how. This document can also be used as supporting documentation for SS disability claims.”



Download: HSP-in-relation-to-ALS.pdf

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