WELCOME TO THE SPF
SPF Vision: The day where all individuals with HSP or PLS are diagnosed, treated and cured.
State of HSP Research: The Promise and the Reality
by Allen Bernard
Researchers working on hereditary spastic paraplegia, better known as HSP, know more today than ever before. They are uncovering new targets for drug discovery all the time. They are discovering the common pathways that cause and connect the many forms of HSP we all deal with everyday. They are finding connections between HSP, PLS and other, better known, motor neuron diseases like ALS, Parkinsons, MS, CMT type II and others all the time. This is good news for everyone.
News And Events
In a new poll by Research!America and the American Society of Hematology, Americans predict that elected officials are not paying enough attention to combating diseases, and that the federal government is currently not spending enough on medical research. Other key findings included: 61% of respondents said the federal government must increase investments in medical and [...]Read More
This great video from the Huffington Posts reminds us that beauty truly is in the eye of the beholder and just because we may look different … we aren’t. It’s no secret that the smooth, plastic bodies staring out of store windows aren’t true physical replicas of the people who stare back at them. But [...]Read More
Goodshop is a great way to raise money for SPF — all from the comfort of your couch or office! Goodshop is an online shopping mall that donates a percent of your purchase price to your cause when you shop at one of 3,000+ partner stores including top retailers like Amazon (1.5% donation), Expedia (up [...]Read More
On October 10, 19-year-old Amanda Smith fell to the ground in respiratory arrest less than two hours after entering Disneyland. Amanda is a regular visitor to the park – her mother, Debbie, takes her as often as possible. “It’s the one place where she lights ups and smiles,” Debbie says. Their visits aren’t easy for [...]Read More