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SPF Vision: The day where all individuals with HSP or PLS are diagnosed, treated and cured.

State of HSP Research: The Promise and the Reality

by Allen Bernard

Researchers working on hereditary spastic paraplegia, better known as HSP, know more today than ever before. They are uncovering new targets for drug discovery all the time. They are discovering the common pathways that cause and connect the many forms of HSP we all deal with everyday. They are finding connections between HSP, PLS and other, better known, motor neuron diseases like ALS, Parkinsons, MS, CMT type II and others all the time. This is good news for everyone.
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News And Events

Want to Be Happy?

A new book written by Christian Smith and Hilary Davidson entitled The Paradox of Generosity scientifically proves that generous people, on the whole, are happier and healthier and have a greater sense of purpose than others.

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Child’s Play: A six-year-old with hereditary spastic paraplegia keeps moving forward.

A fiercely determined Brianna Bernard maneuvers her walker down the hallway of the medical office, grinning ear-to-ear for the camera. The lens loves the exuberant six-year-old, who is ready to take on the world and her hereditary spastic paraplegia (HSP).

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Tell Congress: Pass America Gives More Act

We must continue to push members of the Senate to include the charitable provisions in the America Gives More Act (H.R. 4719) in the final tax extenders deal!

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HSP and Happiness

You are NOT your HSP! You are a happy person with a condition called HSP. HSP does not define you as a person.

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How HSP related to PLS and ALS – This 2001 paper from SPF medical director Dr. John Fink explains how. This document can also be used as supporting documentation for SS disability claims.”

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Download: HSP-in-relation-to-ALS.pdf

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