2012 Annual Conference

June 8-10, 2012, Hilton McLean Tysons Corner Hotel, McLean, VA

"Monumental Hopes & Dreams for a Cure"

Please join us in the lovely Washington, DC/Northern VA area for our 2012 Annual Conference. It will be held on June 8-9 at the Hilton in McLean, VA near the Tysons Galleria shopping center.

The Washington, DC area offers many tourist attractions - museums, momuments, art galleries and more. This website also offers accessibility information. A TeamWalk will be held on Sunday on the National Mall.

The Hilton McLean was chosen because of its location, number of accessible sleeping rooms and reasonable cost. All rooms are $109/night. To reserve a room online, please go to Hilton McLean SPF Reservations.

The conference begins with a Friday night dinner and a presentation. The conference continues on Saturday with several topics ranging from research to therapy. There will also be a range of accessible vehicles on display in the parking lot.

Nazem Atassi, MD

NEALS/SPF Collaboration

Dr. Atassi, an Assistant in Neurology at Massachusetts General Hospital and Instructor at Harvard Medical School in Boston Massachusetts, received his MD in 2002 from Damascus University and completed his Neurology training at Boston University Medical Center. Dr. Atassi completed his Fellowship in Neuromuscular disorders and Clinical Trials at Massachusetts general Hospital. He received his Masters of Medical Science in Clinical Investigation in 2010 from Harvard Medical School. Dr. Atassi is Co- Chairman of the Spastic Paraplegia/Northeast ALS Consortium (NEALS) Task Force and he serves on the Advocacy subcommittee of the ALS Research Group (ALSRG). In 2010, Dr. Atassi received the MIT 100K Life Science Award from Massachusetts Institute of Technology (MIT). He is the Primary Investigator for several research projects focusing on ALS clinical trials and Neuroimaging.

Craig Blackstone, MD, PhD

Studies in HSP

Dr. Blackstone received BS and MS degrees in 1987 from the University of Chicago and MD and PhD degrees in 1994 from Johns Hopkins University. His graduate studies, in the laboratory of Richard Huganir, were on the structure and regulation of glutamate receptors, for which he received the David Israel Macht Award. After a neurology residency at the Harvard-Longwood Neurology Program, Dr. Blackstone completed a fellowship in clinical movement disorders at the Massachusetts General Hospital. During this time he also conducted postdoctoral research with Morgan Sheng at Harvard Medical School, investigating the functions of proteins implicated in hereditary dystonias. Dr. Blackstone joined the NINDS as an investigator in 2001. His laboratory investigates the cellular and molecular mechanisms underlying hereditary movement disorders. He is also a member of the SPF Scientific Advisory Board.

Corey Braastad, PhD

Basic Genetics and Genetic Testing

Dr. Braastad, a member of the Board of Directors for the SPF, is also currently Scientific Director for Athena Diagnostics. Athena Diagnostics is a clinical diagnostics company specializing in the diagnosis of rare neurological, renal and endocrine disorders. At Athena he leads the R&D department to (1) develop and launch new diagnostic assays, (2) routinely run diagnostic tests on patient samples, and (3) improve the quality of diagnostic tests by improving result interpretation. He is currently also leading Athena Insight, a patient service to assess pathogenicity of DNA sequence variants in real time. Prior to working at Athena as Scientific Director, Dr. Braastad worked in the roles of R&D Scientist and Operations Lab Manager. Dr. Braastad received his doctoral degree from Brown University in the Molecular and Cellular Biology and Biochemistry (MC&B) Department working on defining a DNA damage inducible gene promoter. He then worked as a post-doctoral fellow at the University of Massachusetts Medical School in the Department of Cell Biology to define the cell-cycle regulated histone H4 regulatory elements.

Anthony (Tony) Chiodo, MD

Spasticity Management

Dr. Chiodo is co-director for U-M SCIMS and has been the clinical director of Spinal Cord Injury Medicine at the University of Michigan since 2002. He has worked on the U-M SCIMS research projects, Wellness in SCI and Predictors of Health, and Quality of Life in Persons with Ventilator Assistance after SCI. He has published several manuscripts on pain management, wellness in SCI, and is preparing several manuscripts on ventilator weaning after SCI. Dr. Chiodo is the primary attending physician for SCI services in the UMHS Adult Rehabilitation Unit, coordinating all clinical services.

Featured Speaker: John Fink, MD

Research Advances in HSP and PLS

Dr. Fink is the Scientific Medical Advisor for the SPF. Board-certified in neurology and medical genetics, Dr. Fink received his medical degree in 1980 from the Medical College of Ohio. Following internship at the Mayo Clinic in Rochester, Minnesota, he completed a neurology residency in 1984 at the University of Virginia. As a Professor of Neurology at the University of Michigan he directs the Neurogenetic Disorders Program. He directs bacis science laboratory research focused on identifying genes and mechanisms responsible for age-dependent neurological degeneration; and on developing treatments for these conditions. He was the recipient of an SPF research award in 2011, 2006 and 2003.

Mary Kay Floeter, MD, PhD

Update in PLS Research

Dr. Floeter received her MD and PhD at Washington University in St. Louis and completed residency training in Neurology at the University of California, San Francisco. After postdoctoral work at UCSF, she came to NIH as a senior staff fellow in the Laboratory of Neural Control to study mammalian spinal cord circuits controlling movement. She joined the EMG section as a clinical associate in Clinical Neurophysiology three years later and has served as Chief of the NINDS EMG Section since 1996 and as the NINDS Deputy Clinical Director since 2006. Dr. Floeter’s recent research has been dedicated to analyzing changes in motor neurons and spinal circuits in patients with disorders that disrupt the corticospinal motor system.

Mark Weber

Research Grants Evaluation

The SPF receives many more research grants than it can fund. It is important that it fund projects that are scientifically sound. Mark will explain to us the way our research grants are evaluated by our Scientific Advisory Board, a group of neurology specialists who tell us which research proposals are most worthy of our funding. He will also explain how the Board of Directors then selects those grants that will be funded.

Mark is a founding Board member, co-chaired the Foundation Steering Committee and served as the first SPF President. He is an attorney with eleven years experience as an Assistant Attorney General and Assistant District Attorney. Mark has been an active SPF community leader since 1999, launching and managing PLS Friends, and serving as editor of a PLS newsletter. Mark holds a BA in economics and psychology and a JD. Mark and his wife and two boys live in Sherman, CT. Mark serves the SPF as Legal Counsel and also chairs the Research Committee.

download/print hotel/transportation/parking information

Conference Agenda

Friday, June 8

4:00 pm Registration
6:00 pm Reception/Greet and Meet
7:00 pm Dinner
8:30 pm
Craig Blackstone, MD, PhD -
HSP and PLS Studies

Saturday, June 9

7:30 am Registration
8:30 am Craig Gentner – Welcome
9:00 am Mary Kay Floeter, MD, PhD – Update in PLS Research
9:30 am Nazem Atassi, MD – NEALS/SPF Collaboration
10:00 am Break
10:30 am Tony Chiodo, MD - Spasticity Management
11:15 am Mark Weber – Grants
11:30 am Visit Exhibitors/Lunch, etc.
12:30 pm Corey Braastad, PhD – Basic Genetics & Genetic Testing
1:00 pm John Fink, MD - Research Advances in HSP/PLS
1:45 pm Break
2:15 pm View Accessible Vehicles in Parking Lot
3:00 pm Breakout Sessions
- Caregiver Session
- Adaptive Sports
- Adaptive Devices

Sunday, June 10

11:00am - 3:00 pm TeamWalk

Conference Location

Hilton McLean Tysons Corner
7920 Jones Branch Dr
McLean, VA 22102
(703) 847-5000
map, directions
SPF Online Room Reservations