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...For information about HSP and PLS

The Spastic Paraplegia Foundation is proud to be THE source for information regarding Primary Lateral Sclerosis and Hereditary Spastic Paraplegia. Please note that content is based on expert opinion, professional advice and published experience, but does not represent therapeutic recommendation or prescription.

There is a wealth of information at this site and it’s highly likely your questions will be answered here. If you are having trouble, try our Search.

Please consult your personal physician regarding individual medical questions.  If you need help finding a neurologist, check out the sources listed below, or, join our email support group and ask if others in your area have suggestions.

There are several good sources of information regarding physicians who diagnose and treat disorders similar to PLS and HSP.   

1. The Muscular Dystrophy Association’s list of clinics and research centers can be found at http://www.als-mda.org/clinics/alsserv.html#n .
2. The ALS Association offers both a  list of Certified Centers and regional ALS Clinics.
3. Two physician directories are available from the WE MOVE organization -  WE MOVE for adults and WE MOVE Pediatric Centers for children.
    

...To support research

To make a donation to support research now, click Donate! Or, visit our Giving Guide to read about other ways to support research. For information about the SPF Research Grant program or participating in research, please contact info.

...To find out about volunteering

The SPF is volunteer-driven. Our biggest need is help with fundraising, outreach and organizing local meetings and conferences. Please see How to Help or contact volunteer.

...To update your email or mailing address

Please send us a note when either your email or mailing address has changed.

...To give feedback about this website

SPF receives no funding for its website. It is maintained by volunteers and under review by the SPF Medical Advisor and Scientific Advisory Board.

If you have a comment about the content of this site or would like to contribute something for the Patient Forum section, please contact community.

For technical concerns, please contact the webmaster.

You can call us at 877-SPF-GIVE (1-877-773-4483), email, or write to us:

Spastic Paraplegia Foundation, Inc.
7700 Leesburg Pike, Ste 123
Falls Church, VA 22043

Corporate address:

Spastic Paraplegia Foundation, Inc.
11 Douglass Green
Woburn, MA 01801-5377

Donation address:

Spastic Paraplegia Foundation, Inc.
PO Box 1208
Fortson, GA 31808-1208