Upcoming Events
2012 Connections
Oregon SPF Connection
Monday, May 21, 2012
Portland, OR
You won't want to miss this Connection!
The Co-Founder and Director of the Movement Disorder Program at OHSU, Dr. Nutt, will be speaking! He is the current
Professor of Neurology with international recognition for research in movement disorders. He has become a world leader
in understanding gait and balance problems and how to better manage these symptoms.
To accommodate schedules, this Connection is being held on a Monday evening. There is a meeting space reserved at the OHSU School of Nursing, on the Hill, but need to verify parking and accessibility for everyone. From 5:30-7pm, we'll be able to talk amongst ourselves, share and reconnect. At 7pm, Dr. Nutt will be coming to speak with us about various topics related to Movement Disorders such as ours. We are scheduled to meet in Room 304 of the OHSU School of Nursing.
If you plan on attending, please email Ryan & Kim Doud at
gkingkimdoud@msn.com.
Iowa Lunch Connection
Saturday, June 23, 2012
Olive Garden, West Des Moines, IA
There will be a casual lunch Connection held on Saturday, June 23 at the Olive Garden at Jordan Creek Mall in West Des Moines at 11am.
If you plan on attending, please email Jackie Wellman at
hoppywell@ymail.com.
NW Casual Connection
Sunday, June 24, 2012
Bellingham, WA
For the second time, Carin and Sal are opening their home for a Connection for members of our community who live in the Northwest.
They live in northern Washington, a little south of Bellingham. The event will take place on Sunday, June 24 at 1 pm. No speakers - just us!
To talk about ups and downs, things that work and things that don't work.
Carin and Sal's home is located at 289 Beacon Rd in Bellingham starting at 1pm.
If you plan on attending, please email Jean Chambers at jeanchambers@shaw.ca.
2012 Annual Conference
June 8-10, 2012
McLean, VA
The 2012 Annual Conference will be held at the Mclean Hilton on June 8-9 with a TeamWalk on the National
Mall on Sunday, June 10. There will be a Welcome Dinner on Friday, June 8. click for more info
Early registration fees and the SPF room rate at the Hilton are applicable until May 18. If you are interested in attending, please email Annette at
annette.lockwood@verizon.net or call her at 703-493-8779.
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us about your event
Support Groups
Neurologic Disorders Support Group - Ann Arbor, MI
The Neurologic Disorders Support Group Meetings are hosted by Dr Fink on the first
Tuesday of the month.
The next meeting will be held on Tuesday, June 5, 2012 from 6:30pm-8:00pm. This meeting will feature a round table discussion with John Fink, MD.
Lower Level Conference Room B1 407B at the East Ann Arbor Health and Geriatrics Center (4260 Plymouth Rd, Ann Arbor, MI 48109). map and directions.If you have any questions, please contact Lynette Girbach at (734) 936-3087.
MDA monthly Support Group - Nashville, TN
Contact Steve at stevekellarcope@yahoo.com (an SPF member who participates in the group)
AlphaOne bi-monthly Support Group - Bangor, ME
Meeting for people with spinal cord injuries and diseases. Contact Wes Smith at (800) 300-6016.
Ataxia monthly Support Group - Norristown, PA (near Philadelphia)
Mercy Suburban General Hospital. Organized by Liz Nussear, an SPF member. Contact nussear515@msn.com
Ataxia quarterly Support Group - Charlotte, NC
Co-chaired by Cece Russell, a member of the SPF. Contact cecerussell@hotmail.com
Other Local Chapters
Local chapters of these organizations often allow members of our community to attend their support groups. Please consider contacting them and let us know if you join one so we can add that group to the above list:
MDA
ALS Association
National Multiple Sclerosis Society
National Spinal Cord Injury Association
United Cerebral Palsy
Ataxia Foundation
For other locations
State Ambassador ListHosting Your Own Event
Our Casual Connections are as easy as meeting for coffee or lunch.
This offers opportunities to meet others, share knowledge, strategies, ideas, support,
understanding, concerns, issues, solutions, research updates, tears, smiles and laughter.
information@sp-foundation.org
how to host your own rewarding event





