2013 Connections and TeamWalks

October 12, 2013 fundraiser in Mt.kisco, NY

It was a beautiful fall day in NY. About 25-30 people showed up throughout the event. We had a variety of good food provided by those participating which we enjoyed while listening to some wonderful guitar music. The first act, Jim and Jody, sang folk music. Next was the acoustic duo of Chris and Adam. […]

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CA TeamWalk and Connection Weekend

The 11th CA TeamWalk For Our Cures was held on September 27 and 28 with resounding success. Our Friday night had 28 people in attendance 10 with PLS and 5 with HSP and their spouses/caregivers. After enjoying a lovely dinner, we adjourned to a private meeting room for dessert and our UP CLOSE AND PERSONAL […]

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A Big Thanks to Millersville University Art Club

A big thank you needs to go out to the Millersville University Art Club members who designed and silk screened event T-shirts. Club members also helped sell raffle tickets to raise funds at the Third Annual Spastic Paraplegia Foundation Walk in Philadelphia on September 13, 2013 at McGee Rehabilitation Hospital. Thanks for all your help. […]

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Austin Connection

The 2013 Austin Patient Connection was held Saturday, August 24, 2013 with 10 people attending.  John Staehle, North Texas State Ambassador and a Spastic Paraplegia Foundation board member, talked about the work of the Spastic Paraplegia Foundation (SPF) and mentioned the SPF Annual Conference to be held in Dallas,Texas next June 13-15, 2014.  Another member, […]

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Maine SPFer’s Can Get There from Here

Maine SPF members enjoying lunch at their Sept. 18 connection at the Ruby Tuesday in Waterville. Excellent conversation, great food, and new friendships made. A good time was had by all!

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Third Annual PA Teamwalk a Great Success

This year’s annual Pennsylvania Teamwalk was held on September 7, 2013 in Philadelphia at Magee’s Rehabilitation Center. Helen and Chris Kienlen and family hosted the event for the third year and it was a great success! Upon arrival there were balloons and many people waiting in the parking lot to participate in the walk. The […]

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Mt. Kisco Annual Fundraiser

Annual Fundraiser for SPF in Mt. Kisco, NY. When: Saturday, October 12, from 12:00-3:30. Where: the American Legion, 1 Brookside Ave., Mt. Kisco, NY 10549. This years event will be a pot luck luncheon. Entertainment will be provided by 3 different guitarists and I will have a silent auction. I am asking for a $20. […]

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The Annual Austin, Texas Patient Connection

“Fear can only grow in darkness. Once you face fear with light, you win.” ― Steve Maraboli, Life, the Truth, and Being Free The annual Austin, Texas Patient Connection will be held on Saturday, August 24, 2013, from noon to 3 PM at the Brick Oven Restaurant at 10710 Research (Northwest Austin)–512-345-6181.  Renew friendships, make new […]

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California TeamWalk Weekend

Sept. 27th – 28th Pleasanton, CA When: September 27-28, 2013 (Saturday) Where: Valley Community Church, 4455 Del Valle Pkwy., Pleasanton, CA 10:00 am social kick-off:  registration, coffee, pastries, juice and water 10:45 am walk-n-roll together down Main Street Noon lunch After lunch raffle and closing comments Join us for a great time of fun, food, […]

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The 3rd annual TeamWalk/Luncheon

Sept. 7th – Philadelphia, PA The 3rd annual TeamWalk/luncheon for the Spastic Paraplegia Foundation supporting diseases HSP and PLS. Sept. 7th, 10:30 a.m – Raffle and Speaker. $20 donation. 1513 Race Street, Philadelphia, PA Contact: Helen Kienlen — HMK17@comcast.net — for more information

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Support Groups

Neurologic Disorders Support Group – Ann Arbor, MI

First Tuesday of each month, 6:30pm-8:00pm

The Neurologic Disorders Support Group Meetings are held on the first Tuesday of the month.

Lower Level Conference Room B1 407B at the East Ann Arbor Health and Geriatrics Center (4260 Plymouth Rd, Ann Arbor, MI 48109). map and directions.

If you have any questions, please contact Lynette Girbach at lgirbach@umich.edu or by phone at (734) 936-3087.

MDA monthly Support Group – Nashville, TN

First Tuesday of each month
Contact Steve at stevekellarcope@yahoo.com (an SPF member who participates in the group)

AlphaOne bi-monthly Support Group – Bangor, ME

bi-monthly meetings
Meeting for people with spinal cord injuries and diseases. Contact Wes Smith at (800) 300-6016.

Ataxia monthly Support Group – Norristown, PA (near Philadelphia)

2nd Saturday of the month
Mercy Suburban General Hospital. Organized by Liz Nussear, an SPF member. Contact nussear515@msn.com

Ataxia quarterly Support Group – Charlotte, NC

December, March, June and September
Co-chaired by Cece Russell, a member of the SPF. Contact cecerussell@hotmail.com

Other Local Chapters

Local chapters of these organizations often allow members of our community to attend their support groups. Please consider contacting them and let us know if you join one so we can add that group to the above list:

MDA
ALS Association
National Multiple Sclerosis Society
National Spinal Cord Injury Association
United Cerebral Palsy
Ataxia Foundation

For other locations

State Ambassador List

Hosting Your Own Event

Our Casual Connections are as easy as meeting for coffee or lunch. This offers opportunities to meet others, share knowledge, strategies, ideas, support, understanding, concerns, issues, solutions, research updates, tears, smiles and laughter. information@sp-foundation.org
how to host your own rewarding event

 

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