Guide

Self Help Guides

 

Note: Special thanks go to the many caring contributors, to Cheryl Schumer, the founder of the first HSP website, and to Thurza Campbell, who created and edited Synapse Newsletter. These great authors have provided us permission to re-print some of their articles. Some articles edited to fit space.

John K. Fink, M.D., SPF Medical Advisor

HSP Progression

Community Self Help Guides

Accepting a cane
Accessible Vehicles
AFOs - tips on selection
Aide dogs
All Fall Down
Bidets - A Practical Aide
Canes - selection and use
Caregiver tips
Clothing tips for women in wheelchairs
Disclosing to a potential employer
Dos and Dont's for friends
Drugs - Issues with safety and side effects
DUI also refers to medication
Everybody knows, nobody cares (accepting devices)
Hand controls for your car
Home safety check-list
Massage - a medical tax deduction
Pain management
Patterned electrical neuromuscular stimulation
Scooters - thoughts to consider before buying
Tips on shoes
Stair Glides - suggestions

Speech, Bulbar

Living with bulbar symptoms - tips
Speech challenges

Stretching, Exercises

Stretching exercises
Why exercise is important to us

Gene Testing

Gene testing
Gene testing - opinion piece

Social Security

Social security disability programs - how to claim for disability
SSDI determination - behind the scenes

My Diagnostic Story

My HSP story - Aldert
My HSP story - Brad
My PLS diagnosis story

Appreciation, Inspiration

Appreciation
Keepers
Lessons learned
Letter to the Special People in my Life
Living with Disability
Open the Cage - dealing with a new identity
Perspectives

Community Recommended Products

Products